Hace unos días hubo una emergencia en Colombia. Desde España oigo como Nacho me cuenta desde Los Ángeles que acababan de estar “apagando un fuego”. Su nombre es Nelson, y es querido. Ha tenido una recaída. Es como si una pequeña red invisible e infinita nos uniera a todos. No…

Nelson Echeverría is 49 years old and he is one of the HD individuals we assist. He is a wonderful person and always receives our social workers with a big smile. He lives in the outskirts of the town of Saco in the Atlántico department in Northern Colombia. He lives…

Finally the Factor-H team got together in Colombia in April 2022, after a hiatus of two and a half years. During the trip, Ignacio Muñoz and Roger Cachope went to visit the families and kids we support on the Caribbean states, and spent 8 days traveling from town to town…

Everyone can make a contribution to help those most affected by Huntington’s disease. In this brief post, we wanted to thank Dr. Iván Angulo for his commitment to rare disorder research. Iván is a former colleague of Nacho who reached out to raise funds for our Venezuelan colleagues suffering from…

Factor-H is commited to be part of a WEB more inclusive and free. In this wonderful talk, one of the Web founders talks about the past, present and future of the Web in a way that is relevant for all of us. Factor-H is undergoing a migration to Microsoft 365…